Here we go again! 

Friday we got a call confirming that there is Staph in Zachary’s blood.  Amazing, this child should be running a fever, acting very sick but no, he is crawling around like a madman.

6 am I hear him calling from his crib.  We get up, eat breakfast, play with some toys in the family room. 

8:30 am and the Omegaven pump beeps.  Time to unhook.  When Zachary is on the Omegaven the pump must be pole mounted.  12 hours every evening we wheel the pole around the house. 

Zachary is sitting in his room while I go to wash my hands to begin the unhooking process.  Next thing I know, Zachary crawls around the corner to see what I am doing.  It took me second to realize, NO POLE.  For some crazy reason I first thought that he unhooked himself.  No, come to my senses, I scoop him up, walk into his room and there is the pole, lines on the floor leaking fluid.  I open Zachary’s PJ’s and blood is dripping out of the line that is broke.  I grab the scissor clamps off of his fridge (the scissor clamps that we were told to keep close for such a scenario, the scissor clamps that we have never had to use even though we were given them on Oct 25, 2006) and clamp the line. 

I take Zachary into Gary, who was going to sleep in.  Well, change of plans.  We call Dr. Brady and off we go to the ER.  They are going to admit us and Dr. Coln is waiting for us.  He is going to try to repair Zachary’s line. 

We get to the hospital to find out that they are out of broviac repair kits (note to self, get some on order to keep at home in case this happens in the future) and a courier is bringing them from Cardinal Glennon Children's Hospital.  The hope is once we repair the line it will still flush.  With such a small line it clots off quickly.  It will be about 2 ½ hours before we will be able to get fluid into the line to see if it may work.

The nurses on the 7th floor PEDS at St. Johns recognize us.  It has been about 5 months since our last in patient stay.  They are so sweet, they try to calm Zachary down but he wants nothing to do with them.  He is protesting his HUGS tag on his leg so they de-activate it and cut it off.  That seems to make him happy.

Broviac repair is a success.  Zachary SCREAMS through the entire process.  2 nurses, mom and Dr. Coln to get this done.  It was pretty interesting.  They take a new broviac, and it is like inserting one hose into another.  Then they use glue around the seam.  A sheath is then put over the seam and glue is squirted down in the sheath and on both ends.  Heparin goes though the line.  Good news!  Now we wait for 4 hours to make sure there is no leaking of the line.  We need to wait for the glue to completely dry before we can try to flush the line.

Zachary is so worn out by this time that he falls asleep on me.  We take a little nap while Daddy goes home to get some stuff done.  Of course, this happens right before he is to go to NY.

We sleep, we play, we talk to the nurses, we go to the Ronald McDonald room to pass the time.  Dr. Brady stops by.  Zachary just loves her.  He plays with her for a few minutes while we discuss what is going on.  She says we can possibly go off TPN for 10 hours a day!!!  2 more hours off!!!!  We may start this on Monday.

 3:30 pm- THE LINE FLUSHES!  WE ARE OUTTA HERE!  Nurse Rhonda discharges us and off we go.